LETTER TO ALL OF YOU FROM SHANNON

Shannon’s letter to her friends, written January 5, 2009, a month before her death.

Dear friends and family,

I am increasingly reminded of the immortal wisdom of Buckaroo Bonzai:
“Wherever you go, there you are.” I am in a place with plenty of
blessings, but not a place I would have chosen. Some things you don’t
get to choose, you just make the best of it.

My health has been failing rapidly for the past 5 or 6 weeks. On
December 19th an MRI showed cancer in my brain, and one week later
an MRI showed it in my spine.

Looking at death so closely has caused me to open back up to
different parts of my life that I hadn’t really felt for years,
and that has been fun. I have been listening to old tapes of
myself singing, recitals and the most gorgeous choral concerts.
I have thought about all the good teachers I have had, the great
travel, to New Orleans, to Santa Fe, to NYC, to Asheville, NC,
to N. Europe, to Israel, to Ecuador, hiking the Appalachian Trail,
making big moves with Josh sight unseen to Chicago in 1991, and
then Portland in 1997. Discovering the beauty of Portland and
the surrounding forests has been lovely. Being able to return
to Oklahoma to water my roots has also been a gift.

I have many things I would liked to have done before passing the
the big river bar — writing a book, getting music back into my life
on a regular basis, make a quilt, fall in love again, become totally
peaceful (ha!), etc., but I have had a really good life and
for myself, I can accept the loss. It is harder when I think of Hana,
who will be losing a major pillar of her life at a young age. I
was talking with her this morning about the Buddhist idea from a
book called Zen Shorts featuring a giant panda, that there is good
luck in bad luck and bad luck in good luck. My hope is that along
with the pain of our separation, she will benefit from this
experience in the long run. I am so proud of her and am so grateful
I got to be her mother.

I have total confidence in Josh as a good father. He will take
good care of Hana, and nourish her spirit as he can. But it will
be overwhelming, even with backup from my wonderful father and
mother, and I brought a different set of skills and
perspective to our joint parenting work. I would ask you, as
part of my village, to look for ways to keep me alive, to
keep the doors open I was beginning to open for her. Is there
some point of engagement you might find to see her, talk with her,
help her understand the world, succeed in what she chooses to do?
In the course of swimming, riding, walking, cooking, exploring
books, interacting with animals, family visits, whatever feels
natural, to just help her be more fully herself?

In any event, I am glad to have been part of your life. If you
receive this message, you have been meaningful in mine.

I’m not dead yet, so I won’t say goodbye. Fare thee well, Y’all.

Love, Shannon

Let the Mystery be

Written by Shannon on 1-15-2009

Let the Mystery Be

What if we really do go to Heaven to meet up with our dearly departed? What if
Jesus were there? That’s the view of most churches in my young life. What if
Heaven also includes Mohammed and great rabbis and bodhisattvas galore?

That’s assuming we keep our spiritual identities intact. What if all the
individual human personality and soul goes back into a huge swirling pot of
human energy to be reborn? How much experience and identity survives a
reincarnation? (Hana has a nice theory about this that she came up with
herself; she says people come back as what their astrological sign is – she
was born under the horse and the ram.)

But what if we go back into a pool of spirits that includes all living beings?
What if it’s possible to come back in a variety of different beings all
at once: the level of energy at which you “come back” is so fundamental and pure
that a little of you might go into a human, another animal, a piece of river.
Quantum energy.

I don’t know. I tend to believe in both the broadest
idea of Heaven and the distribution of the purest energy. Somehow it makes
sense to me. This isn’t just theoretical any more for me. I don’t feel
scared of what’s on the other side.

Iris Dement says it like this, “Everybody’s wonderin’ what and where we all come
from/ Everybody’s worrying bout where they’re gonna go when the whole thing’s
done./But no one knows for certain and so, it’s all the
same to me;/ Think I’ll just let the mystery be.”

Here if You Need Me

I just read a luminous book, a book I couldn’t put down, a book that was totally right for me right now. It’s a memoir by a woman named Kate Braestrup called Here If You Need Me. She’s living a life in Maine, husband and 4 children, and then suddenly she’s a widow. She decides to go to seminary, becomes a Unitarian Universalist minister, and then chaplain to the Maine Warden Service, to the people who go out into the wild places of Maine to bring back those hurt, missing or dead.

It is so hard to describe what makes this book special. It is good storytelling, first of all. You feel you get to know her, her family, and those she works with in small snippets, funny little bits of conversation. And everything weaves together with an undercurrent of meaning. She reflects, she sifts, she shines some light here and there and finds a little kernel of meaning, that then gets stitched together with another kernel later on. Her views have a lot of spirituality to them, unsurprisingly, but are down-to-earth; she talks a fair bit about God, but never in an ungenerous way. Her view of God is basically pragmatic and comes back time and again to love and to service.

Here’s a nice bit about Heaven: “If you want my considered opinion on what actually happens to us when we die, I have to tell you, I think we just die. I think we cease to exist, in any way, shape, or form, except for the memories we leave behind with those who are still living. This has the starchy sound of certitude, as if I could cite research to back up my conclusions, but in fact heaven can’t be proved or disproved in a lab. So my lack of interest in any afterlife whatsoever is doubtless driven by my own desires and fears. I don’t want to live forever. I’m sick of myself already. [harkening back to previous joke.] Sometimes I remember something funny that Drew [dead husband] said, some offhand comment that still cracks me up, and I think: Ah! To be able to make someone I love laugh years after I’m gone, that is all the immortality I could ever ask for… The stories we tell of heaven and hell are not about how we die, but about how we live.”

Whether you agree or disagree about her vision of Heaven, it’s just nice to ride along with her and hear her ruminate.

Toward the end she speaks of a search that involved dozens of people and their midday break:

In a true story, the end is never tidy. So I can only give you untidy searchers returning to the firehouse for their lunch. They are tired, cold and very hungry. They are greeted with platters of lasagna, bowls of close slaw, tottering piles of oatmeal cookies, and jiggling, jewel-colored Jello-O salads…
Jim comes back to the firehouse with a heavy heart. He has scratches on his cheek, twigs in his hair, pine needles down his pants, and his mother is still nowhere to be found. Yet he takes in the scene before him, mops the rain from his face, and smiles.
“Look at this,” he says. “Look at this! This is incredible!”
The firehouse is filled with people. The old coots in flannel shirts, the middle-aged dog handlers, and the college students with piercings are sharing American chop suey with the state senator and his teenage daughter. The U.S. Marines are comparing blisters with the soccer players, the sheriff’s deputies are breaking bread with the convicts, game wardens share Jell-O with equestrians, the stained-glass artist offers the retired state trooper an oatmeal cookie.
In a little while, they will go back out and search some more. They will try to find a body, living or dead. For now, they are here together, joined in community, bent on the common purpose of love.
“Everyone in the world is here,” the lost woman’s son exclaims. “It’s a miracle!”

And so the miracle is in the search, not the finding, the willingness, not the victory. For me, this makes sense. I have experienced the miracle of food delivery, meditation and massage and acupuncture in my home, financial help and nursing and scheduling and errand running, all kinds of unbelievable community support — and that will remain miraculous whatever happens.

The book is often serious, sometimes sad, but did not feel at all heavy to me. I’m glad she was there on the grocery store bookshelf and for some reason I picked it up. Oh, and her son calls her Mom-Dude. Awesome.

Goodbye Nonnie and Poppa

Poppa and Nonnie 2007

Can we talk about death? Doing so requires a bit of storytelling, because it’s never an important issue until it moves from abstract into the particular, and death takes something of our own. Someone of our own. I was pretty lucky; death let me in pretty easy. One year ago I lost my 2 remaining grandparents. It was sorrowful but also sweet. I wrote this after coming home from the second funeral. In light of what has happened in the last year, it seemed strangely appropriate to share the memories I had hoped to catch for myself and my family.

These are personal memories, that may not mean much to those who didn’t know Fred and ElWanda, Poppa and Nonnie. But I found that the process of saying goodbye to them had a lot to do with telling and hearing these stories, saying goodbye in music and meals, and most importantly in the company of those I loved who had also loved them. Hearing their lives, saying goodbye to their lives, complete, made me understand them in me better, and reflected in the faces around me.

***********************************************************
12/31/07
Will Rogers International Airport on a sunny day — miles of crystal blue sky out the big glass window. Saying goodbye to Oklahoma is always poignant, more so this time.

I will now forever remember the death of Poppa connected to the death of most of the fine old trees in Norman, on the streets where I lived, around the university especially where the trees were biggest. It’s not like the plains have enough trees to spare — even in a relatively old town like Norman that has well over a century under its belt, the people and trucks still seem to outnumber the trees. Branches broken off by the ice storm lie stacked neatly along every curb, the grass turned to straw; and Sunday heard the buzz of chainsaws as cleanup continued into evening. Meanwhile crows and grackles line up on the wires at the intersection of Main and 36th by the hundreds — a gathering of black wings.

We gathered in black and gray and red at Brown’s Funeral Home, on 70 East running into Durant. We passed the bronze plaque honoring the World’s Largest (tongue-in-cheek) peanut on the way home to my aunt’s house after the post-funeral lunch at a new Italian restaurant downtown. The food was good, the iced tea sweet. I’m still thinking about the short brown boots with a mandala stitched on the front I saw in a shop next door; I wanted those boots. I’m aware it’s just grasping at mementos of a part of me that is getting buried more deeply every day. I skip the boots.

What I did bring back: two reddish rocks from Bryan County soil to go in my garden. I’ve got one of Poppa’s handkerchiefs, a blue and gold wool shirt with a tiny hole in the pocket, and a thick sweater with woven alpacas that I brought back from Ecuador and gave to Poppa in 1993. I never saw him wear it much but apparently he rarely took in off in his final, cold months. I’ve got the obituary and service program, with a picture of him at 21 that I cut out and put into a frame. It was 1944; he would marry my grandmother within a few days. He looks handsome, hopeful, a little dreamy.

I brought back a lot of new memories of him, stories I hadn’t heard before. I didn’t know he was the only mud engineer with Baroid Drilling that many of his oilfield colleagues (the original roughnecks) would let on their rigs. My mother’s first cousin told a wonderful story about Uncle Fred taking him out on a site and walking him around, introducing him to people, how Poppa walked out on a narrow beam over a pit that was both deep and wide, as if he were a tightrope walker. As they left, my cousin asked Poppa, “What did you say to them that got us access to all that?” Poppa just smiled and looked at the sky. He never wanted to be a mud engineer in the oil fields; he wanted to be a teacher. But he became one of the best, and the oil company he worked for for 30 years transferred him to West Virginia to help drill the deepest well they’d ever done to that point. They laid him off a few years before he was due to retire.

I found out that “What in the cornbread hell are you doing?” was what he yelled when my teenaged mother drove her sister’s car into the garage wall. I found out that he used to refuse to eat a dinner that wasn’t on the table at 6:00 (my, how times have changed). Until the night my grandmother dumped a plate of homemade chicken and dumplings on his head. “What did he do? What did he do?” his great-grandchildren all asked. “He just sat there,” said his daughters.

The larger rough spots we passed over gently, talking privately, though in every life there are some. He kept his disappointments mostly to himself. He always showed up.

Lots of family were there to share in his memorial, not just three daughters and their children and grandchildren (my sister and her children were sorely missed), but his sister and brother and their children and grandchildren, and sister-in-laws and brother-in-laws and their children.

Along with others, I spoke at his funeral, thanking him for passing along his love of books and gardening. He taught me about doing what you love simply for the sake of doing it, as he staked the tomatoes, separated the irises, watered the peppers and found the best spot for the asparagus plants. I still see him most clearly in his red coveralls and straw hat, out in the back yard tending to his garden. His favorite of the gifts I gave him was a book on organic gardening. And when I am in the garden is when he is most with me. He always told me as we said goodbye, “Shannon Kathleen, fight ‘em fair!” Pause, tiny grin, “And if that don’t work, fight ‘em some other way.”

I already knew his favorite book was the Rubiyat of Omar Khayyam. I already knew he loved the song Greensleeves. I learned to play it on the flute for him when I was 11. At the funeral I found out one of his favorite cds was 25 versions of O Danny Boy, and so we heard that over his coffin. “But if ye come, and all the flowers are dying/If I am dead, as dead I well may be/Ye’ll come and find the place where I am lying/And kneel and say an Ave there for me./And I shall hear, though soft, your tread above me,/And all my grave will warmer sweeter be./For you will bend and tell me that you love me./And I shall sleep in peace until you come to me.”

He said he wanted to come back as a bull in a Montana pasture among the lowing, brown-eyed heifers. But it was my grandmother he smiled at and with in dozens of pictures we looked at through the decades. It was my grandmother he said taught him to love. They had known each other as children, and were married for 63 years. He held on for her much longer than he really wanted to be alive. Finally he ran out of breath.

He looked so different embalmed in the coffin. But I was glad I got the chance to see him, to touch his hands, to hear the things people had to say about him. He was 85 and ready to go.

******************************

My grandmother died three weeks to the day after Poppa. She had had Alzheimer’s for several years, and there was some doubt as to whether she understood he was gone. But she cried when my aunt told her Poppa had gone on to Heaven to be with his parents and her parents. She asked, “How do you know?” tears running down her cheeks. “Because,” said my aunt, “I was there.” Nonnie never asked about him or talked about him again. But she was beyond much in the way of talking, the woman who used to love talking so much. She became increasingly distant, in a world of her own.

The last few times I saw her she did not know me and had trouble speaking, a death of the mind preceding the body. Or maybe just a death of memory. For a woman who loved the past so much, this was indeed a loss. Nonnie used to love to tell stories about her youth, growing up the oldest of 11 in a small town in Southeastern Oklahoma. She would tell stories about her Mammy, the grandmother who came west in a wagon from Tennessee, who always carried a parasol to protect her from the scorching Oklahoma sun, and wore high buttoned boots, and kept a jar of blackberry wine on a high shelf for “medicinal purposes.”

She especially loved telling the sad stories: the young mother whose skirt caught fire on wash day, the children lost in infancy, the stories of tragedy in Indian Territory seemed inexhaustible, as was her patience for them. She would tell a long winding story that you thought had lost the thread, but sure enough, she would bring the circle back to the beginning and find the close.

Born Wanda Lou, she read a book at a young age with the name ElWanda in it. She adopted it as her own, never looked back, and none of us ever knew this until later in life. The new name suited the woman she would become; from Wanda the Dust Bowl, clear-eyed girl emerged Elegant Wanda, Elegaic Wanda, Elevated Wanda, ElWanda, the lady who painted and sewed and belonged to the Flower Club and Republican Women’s Club. Her accent softened and refined. The cooking and nurturing and singing she did all her life carried over seemlessly through all the stages, until she became too weak. But even in her early 80s she could wield a large cast iron skillet with one hand, pouring out the oil while I stared in open-mouthed amazement.

Nonnie was the bedrock, a homemaker extraordinaire. She, like Poppa, might have longed for a wider life, but learned the art of blooming where you’re planted, and made deep roots. During the war, she went to college at OU and then worked in an office at Tinker Air Force Base in Oklahoma City. The first two times my grandfather proposed to her she refused. She was enjoying her taste of being a young woman out in the world. The third time, he said “ElWanda, this is the last time I’m going to ask,” and she said yes, and I don’t know that she ever worked for money again. But she never ever stopped working.

Nonnie was detail oriented, just a bit of a “control freak.” I hope I can say that because I’m a bit like her in that, can’t stand to watch someone do something I could do better without offering advice. (I know, so misguided.) We don’t really like anyone messing in our kitchen. Nonnie would let you help her cook, if you were female, and if you were open to “Honey, let me show you a little trick.” How to wash vegetables, how to peel a potato to take the least skin off, how to arrange your pantry, how to hang your laundry, how to whip your cream. She loved sweets and made wonderful desserts – often. She also monitored her own and everyone else’s weight rigorously. Josh did an affectionate parody of Nonnie that went along these lines: “Why, you look like you’ve put on a little weight. Have some pie.” You need to go on a diet, but not while you’re in my kitchen! She worked every day of her life to be the best she could be and she tried to help all of us in her care do the same.

She raged against the dying of the light so hard and so long. She used to say to me with such frustration, “Shannon, I used to be able to keep my house so beautifully. I wish you could have seen. If those doctors would just figure out what’s wrong with my legs.” Up until the day she had to go to a nursing home after a fall, she kept thinking the effects of aging were temporary and reversible, if only the doctors would figure it out. She spent the last few years, along with my grandfather, in my aunt’s home (bless her!), cared for by family and hospice workers.

She battled inner demons all her life, but in the last few months and finally weeks, she was able to let go of some of her fear of death (she was always afraid she was going to die in her sleep, as if it were a violation that had to be carefully guarded against). In her last few days, she told my mother, “I think I’m dying.” I was so grateful that she accepted what was happening in the end. She struggled so physically for breath at the end, and my mother who was there said that she would never forget the peacefulness that came over her with her final passing, the amazing release of it. I think of the funeral song, “like a bird whose prison bars have flown, I’ll fly away,” and think of it more literally now.

There was a lot of talk at her funeral, which, like my grandfather’s was beautifully presided over by my cousin, about her being together again with Poppa in a peaceful place. Many in my family talk about Heaven much more definitively than I do. I talk with my child about our spirits joining a “pool of spirits” after it leaves our bodies. I don’t see that the differences in our ideas of the afterlife are more important than the similarities.

We all loved her, we all knew her favorite colors and there was the most gorgeous array of flowers in pink, purple, crimson, and just a little blue. With Nonnie in her favorite red dress in the pale pink pearlescent casket she had picked out she was the belle of the ball. We noted that had Nonnie applied her own lipstick (as she did religiously before any Christmas or birthday photo) it would have been a brighter red.

But she looked good, she was good.

I wrote a poem about her teaching her two oldest daughters to sing when they were young girls:

Nonnie is dying,
the mighty oak, matriarch,
mother of us all.

I struggled to answer my child
when she asked me
“what is a soul?”
The soul is the part of a living being
that connects with the source of life, with God, and
can be made deeply happy by sharing
in things you love, like music, or friends,
“or dessert?” she countered. Okay.
I would add maybe something about
the soul having some continuity after the
body is done.

My mother and her sister sang
tonight for their mother,
Juanita (“ask they soul
if we should part”)
and Three White Doves,
the songs she first taught them
50+ years ago.
I think of her, a young mother,
finding each line alone,
singing it alone,
teaching it alone,

and hearing it fly back to you,
together, just the way
you hoped it would sound,
only better.

I had a dream about Nonnie back a year or so ago, when she was very ill. She was talking with us, me and my cousin C, about a fizzy orange or lemon drink she’d helped us make as children, with “creative bubbles.” She was almost happy in the way that her increasing childishness had erased so many sorrows. “Don’t forget,” she said to me, “don’t ever forget.”

*****************************
In the weeks following Nonnie’s funeral, I read a book called On Death and Dying by Elisabeth Kubler-Ross. Recommended by my godmother, I found it on my mother’s bookshelf, doubly blessed. Though written in the 1960s, the book feels remarkably pertinent today, perhaps because it is written with such delicacy, and addresses such universal and unending quandaries. How do we feel about dying ourselves, or losing our loved ones? How do we talk about it? Do we talk about it? “To tell or not to tell, that is the question.” Perhaps that question has been thankfully resolved somewhat in recent decades, as I cannot imagine a physician keeping the news of terminal illness from a patient today. In any case, Kubler-Ross goes on to say, “I believe that we should make it a habit to think about death and dying occasionally, I hope before we encounter it in our own life.”

What jumped out at me was something that would be no doubt an afterthought for many readers of the book: the chapters each began with a quote from Rabindranath Tagore, such as this one: “In desperate hope I go and search for her in all the corners of my room; I find her not./My house is small and what once has gone from it can be regained./But infinite is thy mansion, my lord, and seeking her I have come to thy door…/Oh, dip my emptied life into the ocean, plunge it into the deepest fullness. Let me for once feel that lost sweet touch in the allness of the universe.” I noticed these passages because they are beautiful, of course, but more particularly, because after a lifetime of reading in which I had not come across Tagore, I was suddenly reading not one but two books in which his words were quoted.

The other book is Deepak chopra’s recent book called The Book of Secrets: Unlocking the Hidden Dimensions of Your Life. In it, Chopra quotes a passage again dealing with death, this time the anticipation of what it will be like to die: “The stone will melt in tears/Because I can’t remain closed to you forever./I can’t escape without being conquered./From the blue sky an eye will gaze down/To summon me in silence./I will receive death utterly at your feet.” The utter submission to an inevitable occurrence holds a lot of power for me, in the shadow of these recent losses.

But it is relatively easy to lose an aged grandparent. Both of my grandparents lived long full lives. They were in some way complete, they had finished their tasks, they had run their race. And if there was still some measure of fear or resistance, there was also acceptance and an expectation of reunion.

About the time I returned from the second funeral I found a lump in my breast. I am still in the limbo of not knowing whether it will prove to be the more common cyst that can be lived with peaceably, perhaps even reduced without significant upheaval. Or whether it will be cancer, that four friends of mine are currently struggling with. Facing death under these circumstances is quite different. There is a resistance and a hopelessness that varies with grief and anger and fear. And also a release from fear. The small stuff suddenly melts away.

I do not know what path my life will take from here. But I will be approaching it a little more pared down, a little more open. A lot more grateful if I have years, decades left to go.

Med Mar Letter to Pres. Obama

I am on a cajillion email lists, trying to unsubscribe a few at a time, every time I get on the computer. But I am not yet unsubscribing to the Marijuana Policy Project. They advocate for total legalization of marijuana, which I support for reasons of fiscal prudency, individual liberty, social justice, and environmental common sense. But closest to my heart at this moment for obvious reasons is the issue of medical marijuana. (Did you know that the American Medical Association actually opposed the Cannabis Tax Law which essentially outlawed medical marijuana in 1937?) I received this link to send an email to our new president about recent raids on medical marijuana dispensaries today and sent off this letter. Please send one of your own if you feel so moved.

*************************************************************************

Dear President Obama:

This is officially my first message to you as president and one that could not be more important to me personally and as a citizen. I was so moved by your Inauguration and your words on Tuesday. My 6-year-old daughter Hana and I watched it together.(Just as an aside, she would love to come meet you and the girls and the dog – I think you are all wonderful and feel infinitely better with you and Michelle at the helm.) At one point in your speech, you were talking about peace and she said, “It would be good to try some peace and happiness for a while.” Amen.

Unfortunately, I have Stage 4 metastatic breast cancer. I am on a variety of prescription drugs to manage the pain, and drugs to manage the side effects of the drugs. Medical marijuana has been a very helpful part of my medical regimen, and anyone who would withhold this from a sick person is being cruel. Anyone who would jail a sick person for using this plant is being inhumane.

On January 22, the Drug Enforcement Administration raided a medical marijuana dispensary in California for the first time since you took office. During your campaign, you pledged to put an end to this unconscionable practice, saying, “I would not have the Justice Department prosecuting and raiding medical marijuana users. It’s not a good use of our resources.”

This raid is only the most recent in a string of nearly 100 raids on medical marijuana dispensaries operating legally under state law. Would you please move swiftly to bring an end to these medical marijuana raids, as you vowed in the campaign? As president, you could start by appointing new leadership in the DEA and making it clear to the Department of Justice that this practice is no longer acceptable.

Please work to make this wonderful plant available to those who need it.

Thank you for reading and for putting yourself through the last 2 years so that you could be our new president.

God Bless.
Shannon K. Floyd

What a day!

Lordy, could any more have happened today? We started watching the inauguration at 7:15 a.m. Oh Happy Day! Really enjoyed all that good feeling, all those people! and good speaking and good music (I only really cried, for some reason, when Aretha sang My Country Tis of Thee) and good praying and strong winds. I really admire the fortitude of all those people standing in the cold for hours.

My godmother flew in and arrived about 10:00. So good to have her back. Hana had a cough this morning so I kept her home and she enjoyed the tv festivities with me right up until she didn’t anymore. But she had good patience. My dad had an important VA benefits meeting at 10:00. Hana had her first visit with a counselor who specializes in working with children, and has 2 miniature dachsunds (ace in the hole).

And I had a meeting with my chemo oncologist to discuss current condition in the wake of radiation, drug side effects, and ask more questions about possible chemo treatment. I stayed an extra 2 hours to get IV fluid and anti-nausea medication.

Some days are just full. It was a pretty good day, but I’m still glad all the big stuff if past. Hope your day was good, too

Happen We Here

Josh was telling the story the other day of a fabulous New Year’s Eve maybe 15 years ago in Norman, at a fun party with good friends, drinking champagne, kissing various people under mistletoe, unrolling the Chinese made sign for the special holiday, and finding: “Happen We Here” writ large. It must have sounded the same, and was so great to see up there. That goes along with another fabulous quote keeping me company these days: “Wherever you go, there you are.” From Buckaroo Bonzai, who has plenty to offer if your perspective is just warped enough.

I’m getting there. I think I may need to up my movie and channel-surfing time. It would be a good thing. But pretty warped off my normal path at least. I was supposed to go to New York on the Winter Solstice, the 21st, but Portland was in the grip of a bizarre and beautiful 2-week snowstorm, and so I didn’t go. I rebooked the flight for the 26th, but still did not go. On the 19th an MRI showed cancer in my brain, and a few days later in my spine. Really sucked. So I started radiation on the 24th and we bought a small Christmas tree and had a good time decorating. Hana put the old ceramic nativity scene on her desk, complete with Tyrannosaurus Rex adjoining the lambs.

So I was due to go back to work on the 5th of January, but instead have filed for SS Disability (thank God and FDR for the New Deal), and am working my way slowly through this treatment – 4 more to go. Family and Friends are slowly getting the word. Don’t have as much energy for the phone and individual contact as I wish. But sometimes the time is right and it’s really great to hear from people or see them.

This evening was such a day. After a long 4-day period of bad stuff, culminating with a trip to ER last night (they helped – it’s better- don’t ask). I felt human again today and could enjoy my time and even got a few pieces of business done, paying bills, etc. I found Ellen on tv dancing around with a tight DC marching band on her stage. I worked out some recipes for the next few days and had a wonderful helper make them. I told stories to Hana about a funny story I remembered from middle school, and read National Geo Kids. I talked to the nurse, I saw a good friend bearing delicious treats, and I ate a good dinner. What a joy to eat a good dinner and keep it down! I feel a bit reborn even, with a new perspective. Hope some of it lasts to tomorrow. The quality of the time is so important.

People have consistently asked what they can do and some of the most helpful things have been:

1) Bring a little food. Jill Stear at jillrstear@yahoo.com is coordinating. Light stuff, not too spicy but good and savory (Indian Thai Japanese Chinese Mexican Italian Whatever) is very welcome, heavy on the vegetables. I need to stay away from cheese and meat. Brothy soups (even with a little chicken broth) are great. Fruit is excellent for the mornings. Raw dishes get extra points. Thank you.

2) Take a bag to the Goodwill for me. Where does this stuff come from? Thank you.

3) Rub my feet and hands and head. Thank you.

4) Maybe a playdate here? Hana is being beautifully distracted but I think it’s important that she and I have time here together, even if we’re not focused on each other. You, my friendly parent, stay to read, talk, drink tea, help with kids? Playdate elsewhere? Yep, it’s all good. Thank you.

5) Contribute to my helper/housekeeper fund. N is a great find, and in 2 days he has changed my sheets, vacuumed my floors, cleaned the bathroom and kitchen, cooked 4 meals, and helped me find the wireless button on my laptop that I had accidentally turned off. He’s reasonable and it’s great to have the help. Thank you.

6) Who knows? Every day is a new day.

So there it is. I’m having a Blanche DuBois kind of year, relying on the kindness of strangers, and friends, and family. Sort of mixed with Traviata meets Alice meets Sex in the City (yeah right) meets unfuckingbelievable. And yet it was a really good day. So there.

Happen We Here.

The Road Not Taken, Robert Frost

I memorized this poem for a 7th or 8th grade classroom assignment and fell in love with it. I remembered a good portion of it from memory, but far from all. The places I had to change my interloper words back to the original showed me why Frost was such a great, clear poet.
****************************************

Two roads diverged in a yellow wood,
And sorry I could not be one traveler
and travel them both, long I stood
and looked down one as far as I could
to where it bent in the undergrowth.

Then chose the other as just as fair,
and having perhaps the better claim,
for it was grassy and wanted wear.
though as for that, the passing there
had worn them really about the same.

And both that morning equally lay,
in leaves no step had trodden black.
Oh, I saved the first for another day!
yet knowing how way leads onto way,
I doubted that I should ever come back.

I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I–
I took the one less traveled by
and that has made all the difference.

Lookin’ for the OFF button

Get off the fence

I spent this afternoon at the hospital getting an ultrasound of a recurring lump in my right breast. Also of painful, suspicious lumps by my clavicle and up my neck, very likely indicating metastasis in my lymphnodes. Damn! I thought I was doing so much better than that. Until I wasn’t. Things are moving fast. My therapies are slow, I am slow, and I seem to be losing ground.

My life is in limbo again, waiting for information and to make decisions. My naturopath said, “The highest stress situation we have is one without a power of action.” If I agree to a surgical biopsy of the inflamed nodes in my neck, I would get some very valuable information. But there is a chance that by cutting into cancer cells you permit them to metastasize more quickly.

I don’t want to stop working but I do want to sit still and focus on healing, so I am working on adding more stillness to the mix. Right now it is a flurry of appointments. Today the hospital tests and a talk with my surgeon. Mastectomy would now be “useless” I guessed, “less helpful” he responded. Tomorrow my naturopath and I will talk about my intestinal cleansing program and the overall options. Then yoga for cancer patients, where I stretch it till it hurts and then lay in stillness and get up a little better than before. Body Electronics (like acupressure, sort of) healing and a further refining of my “let your medicine be your food” plan may come next. Last weekend a friend gave me a wonderful shiatsu massage, working around the lumps to loosen tight muscles. Many ways to heal – surely one will come with a cancer OFF button. And I’m seriously considering habanero pepper therapy. Hey, don’t laugh! It’s based on real hot pepper research – lowest rates of cancer in the country in New Mexico, I believe.

Pema Chodron said in an interview or dharma talk once that everyone has issues going on in their life, that you might see them on the bus and never know that one person has just lost a parent (The East Indian woman who did my ultrasound lost her mother only 4 days ago. Halfway through our session the conversation came around and she told me, and cried a little, then we could have a real conversation and some healing.), someone else is worried about their job, someone else is going to chemotherapy.

When I first heard her say this, cancer was not a part of my life. Now I understand what it means to be on your way to chemo. It means you are about to submit your body to a needle with toxic chemicals. (“Allopathic” medicine or western medicine, means “other disease” or “different suffering.”) In The Big Lebowski Sam Whatshisname says, “Sometimes you eat the bear and sometimes the bear eats you.” You just have to hope with chemo that the bear eats the cancer cells and he don’t eat you. It was not an easy decision to do chemo, or to discontinue it, or to (can’t believe I’m saying this), reconsider chemo. “Do I stay or do I go now? If I go there will be trouble, If I stay there will be double…”

Women, and men, facing this decision stand on a precipice. You can jump off this here cliff (the chemo), or that there cliff (natural healing therapies). Any way you go takes a kind of faith in the process. One woman who recently completed her chemo treatments and is doing well said, “I might have tried the alternative treatments route, but I didn’t have enough faith in them.” I have great faith in them, they are healing just about everything I needed healed. Except the cancer. So my faith is just a little shaky right now.

Thank God for my daughter, who is more than a handful, but who told me this morning first thing how much she likes my smile and who sang a song with coloratura about putting on her pajamas the other night, my dad who is a great support and helper in his own inimitable way, my mother who is moving heaven and earth to come lend her considerable weight to tug-of-war team, my sister whose love has been steadfast, my godmother who has stayed in touch and connected me with opportunities and wonderful women, my compadre who will still move furniture for me and give me his insight and advice, my workmates who have bent over backwards for me as I’ve gone through the stages, and my friends and family who spend time with me and reach out in different ways.

So I have a few days to make the first round of decisions and maybe a few weeks to make the next round of bigger ones. Biopsy? Travel to family Christmas? Jump whole-heartedly on a different path, wildly different or mildlly different? And why does the universe keep trying to push me/pull me off the fence, huh?

At least I had a good dinner, which in an undeniably good thing and makes up for a multitude of sins. So I will plan to sleep well and take it on again, maybe with my heart cracked just a little bit wider open, tomorrow. Isn’t that what Scarlett said?

‘Night.

Lights Out, a book about sleep

Winter branches
I’m reading a book about sleep and our lack of it called Lights Out: Sleep Sugar and Survival. Catchy title, eh? The authors, T.S. Wiley with Bent Formby, Ph.D., say we need to get back to the garden, meaning back to a rhythm aligned with sunup and sundown, that we are evolutionarily programmed to be awake in the light and sleep when it’s dark, and to do without much food in the winter, when food would ordinarily be scarce.

Instead, we have lights and sugar well into the wee hours and the shortest of days, and our rates of obesity, diabetes, and cancer have all gone through the roof. So far, it’s a strange and fascinating book, offering a grand sweep of history, going back to our origins as homo sapiens 70,000 years ago, when we have archeological evidence of domesticated fire, which set us apart from the other animals. But even this change, which did away with hibernation and seasonal reproduction, was not as drastic perhaps as the insertion of electricity into our lives:

The sudden appearance of a sun that never sets is killing the slower evolvers among us in the no more than eighty years it’s existed, which is not even — by today’s standards — an entire length of a human lifetime. The irony is that we managed to use fire for at least 450,000 lifetimes added together…[emphasis added.]

Slower evolvers. And I say to myself, why not? To the list of potential causative factors in my own cacner story, to pesticides, plastics and smog, to antibiotics, birth control pills and yeast, to sugar and animal products and bad fats and refined flours, sleep deprivation and emotional disturbance, heavy metal toxicity and modern-day stress, I will now add, “slow evolver.” I’m slow as Christmas in many ways: walking, talking, learning, why not evolving?

I appreciate the grand historical view. Wiley and Formby tend to be loose with their metaphors, with a hint of irony slipping in:

Without sleep, you become defenseless and autoimmune. Your immune system, too, like every other mechanism of life, is comprised of a sacred duality. Th1 and Th2 cells stand on that board on the log as the two halves of your immune function. One side controls defense and the other side controls offense, because what we term “your immune system” doesn’t really belong to you, per se. The real entity that serves as your immune system is a sentient, spooky, intelligent force, reminiscent of the proverbial Grim Reaper, that keeps score. This spiritual policeman/gatekeeper really exists to even the score for all living things. It’s actually the biosphere’s immune system, not yours. You only get to be a part of the whole scheme if you play ball.

Hello Gaia theory! It reminds me of a recent documentary about an ant colony, what we think of as individual creatures acting as one entity.

It’s too bad the authors seem to think that Twinkies and a banana have the same effect on the body because they lump all sugars together, and that they think vegetarianism is a crock espoused by “whiny Greenpeacers.” (See The China Study by T. Colin Campbell for research on how cancer risk rises in relation to the amount of animal products in the diet). Oh well, that’s not their real focus. What they do well is build a case about our modern human relationship with time that brings in many wonderful small facts and tidbits to bolster it. I love this quote from Lewis Thomas: “Music is the effort we make to explain to ourselves how our brains work. We listen to Bach transfixed because this is listening to a human mind.”

Sleep and time are important variables in my own equation of healing and illness. This passage about the modern American schedule struck home:

Mom either picks up the kids at day care and they go out, or she calls the baby-sitter to start boiling the water for the pasta. It’s already at least 6:30 p.m. by the time dinner… is ready. Mom needs a drink just to keep going and there’s still homework, baths, and “quality time” to accomplish. If Mom cooks a real dinner from more than two of the recognized food groups, instead of feeding the next generation Cheerios or pasta, it’s even later. And if she does that, Mom needs two drinks.[Usually one would do me.] Now it’s at least 9:00 or 9:30 p.m. and she still hasn’t had a minute to sit and stare after work. In the summer, this would actually be okay. But the scenario we’re describing is during the school year, which means “dark time” in nature, so this single-parent family… will endure at least five, maybe seven, extra hours of light in a twenty-four-hour period, day in and day out for seven months out of season every year, year in and year out, decade after decade– until Mom gets breast cancer… [Spooky.]

The combination of scientific research and pure intellectual play, finding connections and following them to full-blown conjecture reminds me of Leonard Shlain. His book, Sex Time Power, in particular has been in mind, as Shlain pondered the linkages between women’s cycles, lunar cycles, and the way we began to conceive of time in more than a present moment tense. Having a sense of the future and the past gave homo sapiens, and gyna sapiens, the ability to work on larger, longer projects, to build technologies that began as a simple spear and wound up as a computer.

So this book about our bodies’ relationship with light on the planet, and darkness, and the turn of the seasons, and our gradual disconnection from all of it (so that I can now sit here on my laptop 4 hours after sunset writing and thinking), this work of theoretical sociological biology or whatever you’d call it, offers the other half of the picture to the discussion of prayer, or to my own meditation practice. The theories in this book balance out my thinking in a way. Facing mortality has me thinking about meaning, about spirit and practice and conceptions of God. But that part alone would be incomplete. There is spirit and there is flesh. One completes the other.

What kind of body is it that I am living with and in, and how did it come to be this way over the many many years we have been evolving with the planet?

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